NF Stories
intro blurb...
Adults with NF1
Living with NF: What Trauma, Healing, and Empathy Taught Me
Living with Visible NF: Finding Community, Faith, and Belonging
When Visibility Becomes Power: One Woman’s Experience with NF1
When You Become the Expert: Navigating NF Without a Clinic
Teaching, Learning, and Living with NF
Five Generations of NF: Ross’s Story
Growing Up with NF1 Before Anyone Knew Its Name
From Diagnosis to Independence: An Adult Life with NF1
One Foot in Front of the Other
Learning to Fly: Finding Freedom with NF1
Children & Young Adults with NF1
Finding Belonging: A Young Adult’s NF1 Journey
Adults with NF2-SWN
Still Emily: Living with NF2 and Finding Hope
I Can Hear Him Say ‘I Love You’: Living with NF2
Never Give Up: Two Sisters, One Family, and Life with NF2
NF1 Parents & Caregivers
Fighting for My Son: A Father’s Journey with Childhood NF1
Considering Clinical Trials for NF1: One Family’s Experience
Raising Twins with NF: Visibility, Courage, and Living Fully
NF2-SWN Parents & Caregivers
My Dream is to Heal- Ryan’s NF2 Story
NF Runs Through Our Family: But It Doesn’t Define Us
Share your own story
Whether you live with NF, care for someone who does, or support the community in another way, your experience helps others.
Sarah Pater and Sons
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.
Kelly Carpenter
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.
Jessica and Elissa
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.
Sarah Gorden
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.
Emily Owen
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.
Charlotte – Finding Belonging
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.
Karen Thornton
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.
Robert McNaughton
This is the story of Peter Rabbit and his battle against his nemesis, Mr. McGregor, the grouchy Scottish gardener.