Living with NF often comes with a lot of questions.
Here you’ll find answers to some of the most common questions about NF, support, and care in British Columbia. If you don’t find what you’re looking for, we invite you to connect with us. You don’t have to navigate this alone.
And for more in-depth details and resources:
Living with a lifelong condition like NF can increase the risk of anxiety, depression, or attention-related challenges for some people. Emotional well-being is an important part of care, and support is available.
NF care often involves a team, which may include family doctors and specialists such as neurologists, geneticists, ophthalmologists, or others, depending on individual needs.
Because British Columbia does not yet have a dedicated multidisciplinary NF clinic, individuals and families may need to advocate for coordinated care. We can help.
If you’re newly diagnosed or looking for reliable information, you’re in the right place. Our website offers:
If you need more personalized support, we encourage you to reach out directly.
Yes. Navigating NF care in BC can be challenging, especially without a dedicated multidisciplinary NF clinic. We regularly help individuals and families:
You don’t have to figure this out alone. We’re here to help.
