About Us
Since 1984, the Tumour Foundation of BC has walked alongside individuals and families affected by neurofibromatosis (NF) by offering support, information, and connection through every stage of the journey.
Founded by Paul Ralfs, the Foundation was created in response to a simple but urgent need: people affected by NF needed somewhere to turn and someone who understood.
Today, that commitment remains at the heart of everything we do.
Our Why
A diagnosis of NF can be overwhelming. It often raises more questions than answers about health, genetics, education, mental well-being, and what the future may hold. We exist to make sure no one has to navigate that uncertainty alone.
We believe that access to accurate information, compassionate support, and a connected community can profoundly change lives.
How We Work
We listen.
We respond.
We stay connected.
Our approach is grounded in lived experience, medical knowledge, and deep respect for the diverse realities of people affected by NF. We collaborate with healthcare professionals, researchers, educators, and community partners to ensure our programs are relevant, inclusive, and responsive.
Most importantly, we are guided by the voices and needs of the NF community itself.
How We Support Our Community
We provide trusted, practical support for individuals and families affected by NF across British Columbia, including:
- One-to-one support tailored to individual needs
- An NF Support Line for questions, guidance, and reassurance
- Educational resources for individuals, families, and professionals
- Annual family symposiums that connect the community with experts and each other
- Scholarships that support education and independence
- Awareness initiatives that improve understanding of NF
- Advocacy support, including helping individuals communicate with healthcare providers and understand care options
I am not sure what we would have done if we hadn’t found the Tumour Foundation. The staff’s commitment to the NF community and to our family over the years has made a significant difference to how we handled our son’s NF plexiform tumour. The staff at the Foundation are always there listening, researching, and reminding us that we are not alone – a true gift.
Our Mission
To optimize the health and well-being of British Columbians affected by neurofibromatosis.
Our Vision
A future where every person affected by NF has access to support, understanding, and the opportunity to live well.
Meeting people where they are with clarity, compassion, and informed support.
Our work spans childhood through adulthood, because NF is lifelong and so is our commitment.
Guiding with care, professionalism, and a commitment – ensuring that no one affected by NF walks alone.
Looking Ahead
As research advances and awareness grows, our role continues to evolve. We remain committed to expanding access to support, strengthening education and advocacy, and ensuring that the NF community has a strong, trusted voice- today and into the future.
Because no one should ever walk this path alone.
Our Supporters
We don’t walk alone, either – these organizations walk beside us in supporting our community:
