NF Stories
intro blurb…
Adults with NF1
Living with NF: What Trauma, Healing, and Empathy Taught Me
Living with Visible NF: Finding Community, Faith, and Belonging
When Visibility Becomes Power: One Woman’s Experience with NF1
When You Become the Expert: Navigating NF Without a Clinic
Teaching, Learning, and Living with NF
Five Generations of NF: Ross’s Story
Growing Up with NF1 Before Anyone Knew Its Name
From Diagnosis to Independence: An Adult Life with NF1
One Foot in Front of the Other
Learning to Fly: Finding Freedom with NF1
Children & Young Adults with NF1
Finding Belonging: A Young Adult’s NF1 Journey
Adults with NF2-SWN
Still Emily: Living with NF2 and Finding Hope
I Can Hear Him Say ‘I Love You’: Living with NF2
Never Give Up: Two Sisters, One Family, and Life with NF2
NF1 Parents & Caregivers
Fighting for My Son: A Father’s Journey with Childhood NF1
Considering Clinical Trials for NF1: One Family’s Experience
Raising Twins with NF: Visibility, Courage, and Living Fully
NF2-SWN Parents & Caregivers
My Dream is to Heal- Ryan’s NF2 Story
NF Runs Through Our Family: But It Doesn’t Define Us
Share your own story
Whether you live with NF, care for someone who does, or support the community in another way, your experience helps others.