It’s not cancer. It’s NF.

Tumours suck.
 But not all tumours are cancer.

NF, also known as neurofibromatosis, is a group of genetic conditions that cause tumours to grow on nerves throughout the body. These tumours can affect the brain, spine, skin, and nerves and they affect people in very different ways.

Tumours don’t have to be cancer to change a life.
NF is lifelong, unpredictable, and often misunderstood.

NF affects 1 in 2,000 people – yet most have never heard of it.

What NF Can Look Like

NF can lead to:

  • Vision or hearing loss
  • Chronic pain
  • Learning challenges
  • Visible tumours or disfigurement
  • In some cases, cancer
Learn more about NF

Is there a cure?

There is no cure yet but there is progress.

A breakthrough medication, Koselugo, has been approved for use in Canada to treat children with inoperable tumours caused by NF1. For many families, this was the first real treatment option and a powerful sign of what research can make possible. With continued support, we can:

  • Advance research
  • Improve treatments
  • Push for better care
  • Move closer to a cure
Hope is built through action.

We are the Tumour Foundation of BC

Since 1984, the Tumour Foundation of BC has been a leading voice for the NF community in Canada.

We are a small, dedicated charity making a meaningful impact by providing:

  • Advocacy for better care, access, and treatment
  • Education and awareness for the public and healthcare providers
  • One-to-one support and peer connection
  • An annual NF symposium and trusted patient resources
  • Youth scholarships that support education and independence

Our mission is to improve the health and wellbeing of people affected by NF across British Columbia- and to ensure no one is left to navigate this condition alone.

Because No One Should Face NF Alone

Learn more about NF through one family’s journey:

Meet Anina & Alexa

What can you do today?

You don’t need to have NF to make a difference.

Donate


Your gift helps families find clarity, support, and hope in the face of uncertainty.

Be a Voice


Share this page. Talk about NF. Awareness changes lives.

Volunteer


We’re powered by everyday people. Tell us how you’d like to help.

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