Share your story

Your voice matters.

Living with NF can feel isolating but stories remind us that no one walks this journey alone.

Whether you live with NF, care for someone who does, or support the community in another way, your experience can help:

  • Build connection
  • Strengthen advocacy
  • Increase understanding
  • Offer hope to someone who needs it

You are more than the NF diagnosis. We’d love to hear about your life, your perspective, and what this journey has meant to you. You can share your story in writing, by uploading a video, or both.

Before You Begin

You can answer as many or as few questions as you like.

Your submission does not guarantee publication. We may also edit submissions for length or clarity while preserving your voice.

You can tell us if there are parts you prefer not to be shared publicly.

Take your time. There is no “right” way to tell your story.

We will contact you before publishing your story.

    About You


    (If you are submitting on behalf of someone else, please include your name and your relationship to them.)


    (For follow-up questions only. You will not be added to any mailing lists.)

    Your Story

    You can answer any of the prompts below. There is no minimum or maximum length.

    1. Tell us about the early days of diagnosis.

    (What do you remember? How did you or your family feel?)

    2. How does living with NF impact your life today?

    (Physically, emotionally, socially, professionally – however that feels true to you.)

    3. Has there been a defining moment in your NF journey?


    4. What has helped you cope or move forward?

    (People, mindset shifts, faith, community, hobbies, etc.)

    5. What do you wish people understood about NF?


    6. NF is only one part of your story. Tell us about you.
    (What do you love? What brings you joy? What makes you, you?)

    7. Are you currently or have you previously participated in clinical trials?
    (If you feel comfortable sharing, what was your experience?)

    8. Have you participated in any Tumour Foundation of BC programs or events?
    (Shine a Light, Charity Challenge, symposium, community events, fundraising, etc.)

    Photos

    You may upload:

    • Photos of yourself or your family

    • Before/after photos (if applicable)


    High-resolution images (taken directly from a phone or camera) work best. (??mb max)

    Optional: Share a Video

    You are welcome to upload a short video instead of, or in addition to, written responses.
    No professional production needed. A simple video recorded on your phone is perfect.

    You might share:

    • What diagnosis meant to you

    • A moment that changed you

    • What you want others to know

    • What gives you hope


    (??mb max)

    Permission & Use

    By submitting this form, you give the Tumour Foundation of BC permission to use your story, photos, or video for awareness and educational purposes, including: website, social media, newsletters advocacy materials, print or digital resources.

    We will contact you before publishing your story.

    You understand that:

    Not every submission will be published. That content may be edited for clarity or length.
    You may request changes before publication.

    If a child is included in your submission, you confirm that you are their legal guardian and grant permission for their story and image to be shared.

    Thank you for trusting us with your story.

    Your voice helps ensure that no one faces NF alone.

    See what others have shared:

    NF Stories